Lupus SK Society Inc.
OUR MISSION: To provide support for those affected by LUPUS through understanding, education, public awareness and research.
February 5, 2012
The ninth annual World Lupus Day, Thursday, May 10, 2012, is a united awareness campaign by lupus organizations around the globe.
Five million or more people in the world have lupus. It is a chronic autoimmune disease which often attacks young women of childbearing age, but individuals of any age or gender can develop lupus. The ongoing and complex nature of lupus causes a wide range of symptoms and effects with repercussions on family, friends, and work colleagues as well. Despite these facts, lupus remains a relatively invisible health issue to the public, health professionals, and governments world-wide, thus continuing the need for increased lupus awareness.
World Lupus Day focuses on the need for heightened public awareness, improved patient healthcare services, increased research into the causes of and a cure for lupus, enhanced physician diagnosis and treatment of lupus, and better epidemiological data on lupus globally.
Please join us in our efforts to accomplish these goals. We invite you to visit www.worldlupusday.org and read further on this website to learn how you can become involved.
Please "take a step to conquer lupus" and join Lupus Canada's 11th Annual Walk for Lupus. It's held in the spring to coincide with World Lupus Day, observed each year on May 10. Lupus organizations from across the country participate in Lupus Canada's most important National Fundraising and Awareness Event. More information and online registration is available at: www.walkforlupus.ca. You can find a walk near you on the map displayed there.
The following Walks for Lupus are being planned in Saskatchewan. We invite you to come walk with us to raise funds for lupus awareness, support services and research. Pledge sheets, information about sponsoring a walker and other details are available from the contacts listed below.
Saskatoon's program and walk will begin at the River Landing Amphitheatre, 110 Spadina Cres. E., on Sunday, May 13th at 2:00 pm. Registration is at 1:15 pm. Contact: Irene Driedger at 306-931-1063 or idriedger@sasktel.net.
The Regina walk will be held at Wascana Lake, Pine Island, on Saturday, May 26th at 1:00 pm. Registration is at 12:30 pm. Contact: Irene Driedger at 1-877-566-6123 or idriedger@sasktel.net.
Moose Jaw will hold its walk on Saturday June 23, 2012. at the West Entrance of Crescent Park. Registration is at 1:00 pm. The program and walk will begin at 1:30 pm. Contact: Chris Weber at 306-693-3500 or chris@cwstringworks.com.
Meadow Lake will hold its walk on Saturday, May 5, 2012, 11:00 am, at the Lions Park, Meadow Lake. Registration is from 10:00 am to 11:00 am. A BBQ will take place at the Meadow Lake Co-op from 12:00 pm to 2:00 pm. Contact: Melissa McLaughlin at 306-240-9771 or memoorcraft@sasktel.net.
Prince Albert will hold a Virtual Walk on May 20th. For more information, contact Karen: 306-764-4280 or Mark: 306-981-3488.
The Weyburn walk will be held at Riverside Park, on Sunday, May 27, at 1:00 pm. Registration is at 12:30 pm. Contact: Tasha McLeod by e-mail at smiley_rainbow2@hotmail.com, or Irene Driedger at 1-877-566-6123 or idriedger@sasktel.net.
If you would like your Saskatchewan Walk for Lupus listed on this website, please contact Irene Driedger at 1-877-566-6123 or e-mail lupus@lupussk.com.
Due to the outstanding success of the 2nd Annual Lupus Golf tournament, the 3rd annual golf fundraiser is now being planned. The date has been set for Friday, August 24, 2012, and the tournament will take place once again at the Willows Golf & Country Club, Saskatoon. The entry fee is $600/team, and includes 18 holes of golf, cart, and dinner buffet, plus one complimentary 18 hole pass at The Willows. To register your team, please complete and mail in a copy of our registration form. All proceeds will go towards Lupus Education, Public Awareness and Research. For more information, please view our poster or contact Irene Driedger at 1-877-566-6123 or idriedger@sasktel.net.
Lupus SK would like to thank Adventure Destinations for their generosity as TITLE SPONSOR for our tournament this year.
Thank you to EVERYONE who supported this very successful fundraiser!
Judy Willey from Clavet, SK has lupus and has chosen to hand-bead a beautiful selection of bracelets as a personal fundraiser for LUPUS SK. To place an order, or for further information, please view our Fundraising page.
Lupus SK invites businesses and groups across Saskatchewan to join in for some fun with our "Dress Down for Lupus" project.
Each participating business or group may choose its own "Dress Down for Lupus" day(s) on which employees make a donation to Lupus SK for the privilege of dressing down. Donations will go towards lupus awareness, support, education and research, and will benefit those who are affected by this chronic autoimmune disorder.
Lupus SK will provide a promotional poster, the "Dress Down for Lupus" pin-back buttons for distribution to each participant, and a donation collection envelope. The donation amount per participant is at the discretion of the business or group. The donations collected can be forwarded to the Lupus SK Treasurer following the event.
Contact Irene Driedger at 1-877-566-6123 or lupus@lupussk.com to find out more and/or arrange for your business or group to participate.
Spring Symposium
Date: Saturday, April 21, 2012
Time: Registration at 12:30 pm, Presentation at 1:00 pm
Location: Smiley's Buffet and Catering, 702 Circle Drive East, Saskatoon SK, in Banquet Room B (Smiley's Buffet and Catering is located across from the Home Depot. There is plenty of free parking behind the restaurant.)
Speaker: Ian Delmage, Pharmacist for Shoppers Drug Mart, will present, "BENLYSTA™ and Other Treatments - Which is Right for the Patient?"
To pre-register, or for further information, contact Irene Driedger, 1-877-566-6123 or idriedger@sasktel.net.
Admission is free. Everyone is welcome.
Fall Symposium
Dates: October 20 and 21, 2012
Watch for further details.
Board Meetings
Dates: March 31, September 8 and December 1, 2012
Times: 10:30 am to 5:00 pm
Location: Mechanical Contractors Association of Saskatchewan, Inc., #105 - 2750 Faithful Avenue, Saskatoon
Everyone is welcome.
Annual General Meeting
Date: Sunday, December 2, 2012
Time: 10:00 am
Location: Mechanical Contractors Association of Saskatchewan, Inc., #105 - 2750 Faithful Avenue, Saskatoon
Everyone is welcome.
Dr. Lily Lim, MD, MRCPCH, PhD(c), Lupus Fellow, Division of Rheumatology, at SickKids, Toronto, has recently made a request to Lupus SK to help locate former patients to assist in a study on the long-term outcomes of patients with childhood-onset SLE. Dr. Lim and her collaborators on this project, Dr. Earl Silverman and Dr. Dafna Gladman, who are both experts on SLE, believe this study will advance the understanding of outcomes of patients who had childhood-onset disease. If you are one of the patients Dr. Lim is looking for and are interested in being involved in this important project, please e-mail: lily.lim@sickkids.ca.
Lupus SK regularly contributes to various Lupus Research programs as part of our efforts to fulfill our Mission Statement. Dr. Alan Rosenberg recently accepted our $2,500.00 donation, at the Lupus SK Fall Symposium, October 1, 2011, on behalf of the University of Saskatchewan Pediatric Rheumatic Disease Research Laboratory. This research offers exciting hope for the future because not only does it pertain to pediatric lupus patients, but in exploring how lupus first develops, a greater understanding of what causes lupus may be uncovered. An article outlining this research is available here on our new research page.
Past symposium presentation summaries are now available on our website. The first two summaries are from the Lupus SK Spring Symposium, April 16, 2011. Watch for more to be added in the future.
Alice Germann, Public Education Coordinator for the Alzheimer Society of Saskatchewan, discussed "Heads Up for Healthier Brains". This presentation was designed to encourage all people to take care of their brains, strive to achieve optimal brain function and reduce the risk of developing Alzheimer's disease, but the strategies are also helpful in reducing and managing the cognitive difficulties which can occur in lupus.
Dr. Natalie Shiff, a pediatric rheumatologist in Saskatoon, spoke about "Pain and Stress Management: Day-to-Day Living with Lupus". It is a comprehensive review of the many challenges people with lupus face and offers constructive ways to adapt and live well with lupus. This summary will be available only until the end of March 2012.
Thank you to Alice Germann and Dr. Natalie Shiff for allowing Lupus SK permission to post their information.
"Living Well With Lupus" Fact Booklet
Lupus SK has undertaken an educational outreach project to provide this booklet free of charge in Saskatchewan, to people with lupus and their families. It has also been distributed to Rheumatologists, Family Physicians, Regional Health Authorities, and Pharmacies. If you would like to receive a copy or know of a physician or pharmacy in your area who may have been missed, please contact Irene Driedger at 1-877-566-6123 or idriedger@sasktel.net.
Lupus Information Kit
A free Lupus Information Kit may be requested at our mailing address, toll free phone number or e-mail address listed below. The kit includes basic lupus and membership information, and a complimentary copy of our newsletter, "The Saskatchewan Lupine".
Lupus SK is proud to say that we are an almost entirely volunteer-run organization. That means a large portion of the funds raised go towards the goals in our mission statement, to provide support for those affected by lupus through understanding, education, public awareness and research. A small amount only, is used for administration. That also means that our volunteers are indispensable! Lupus SK would not exist without volunteers. That is why we need you to please consider joining our team as a volunteer.
New volunteers are always welcome and there are many ways to become involved. Let us know what your talents and interests are and we will find just the right spot for you. We have a lot of fun, we feel connected and the accomplishments are very worthwhile.
Marianne Weber, lupus@lupussk.com or (306) 693-6368 Irene Driedger, idriedger@sasktel.net or 1-877-566-6123
Lupus SK is pleased to be able to accept online donations through the CanadaHelps.org website.
CanadaHelps.org is a not-for-profit charity portal that serves as an information resource about charities in Canada and seeks to promote and facilitate philanthropy through online giving. As a public foundation, CanadaHelps uses a donor-directed funding model to facilitate online donations from donors to charities. CanadaHelps.org offers its services at a very low cost to the charity and at no cost to the donor.
To view our Charity Profile or make a donation, please use the 'Donate Now' button.
Contact Us!
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Box 88, Royal University Hospital 103 Hospital Drive Saskatoon, SK S7N 0W8 |
| Call Toll Free: 1-877-566-6123 |
| or e-mail lupus@lupussk.com |
Registered charity number: 11902 5880 RR 0001
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